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Study Personnel

John Hokanson, MD

John Hokanson, MD
SHINE Principal Investigator
Professor, Pediatric Cardiology
University of Wisconsin School of Medicine and Public Health, Department of Pediatrics

Dr. Hokanson is a pediatric cardiologist and associate professor of pediatric cardiology at the UW SMPH. He is the director of the echocardiography laboratory at the American Family Children's Hospital in Madison, WI. His main academic interest is in the diagnosis of congenital heart disease in newborns.

Stuart Berger, MD

Stuart Berger, MD
SHINE Co-Principal Investigator
Medical Director, Cardiology
Children’s Hospital of Wisconsin

Dr. Berger is a Professor of Pediatrics at the Medical College of Wisconsin, and Chief of the Division of Pediatric Cardiology. He also serves as the Medical Director of the Herma Heart Center at Children’s Hospital of Wisconsin and the Medical Director of Project ADAM, an initiative aimed towards education as well as the implementation of school automatic defibrillator programs in the state of Wisconsin. Dr. Berger's clinical and research interests include sudden cardiac arrest in children and its prevention, cardiac transplantation, pulmonary hypertension, interventional cardiac catheterization, cardiac critical care, DiGeorge syndrome immunology and congenital heart disease. He has published several papers, chapters and edited books in the field of pediatric cardiology as well as on the topic of sudden cardiac death in children and adolescents.

Elizabeth Goetz, MD, MPH

Elizabeth Goetz, MD, MPH
SHINE Education Coordinator
Professor, Newborn Nursery
University of Wisconsin School of Medicine and Public Health, Department of Pediatrics

Elizabeth Goetz is an Assistant Professor of Pediatrics at the University of Wisconsin and Director of the Normal Newborn Nursery. Her research and professional interests focus on the health and well being of newborns. Dr. Goetz has a background in Maternal and Child Public Health and an interest in education. In her current position, she oversees the education of medical students and pediatrics residents in newborn care as well as the development of policies and procedures in the nursery. In addition to pulse oximetry screening, her other interests include Neonatal Abstinence Syndrome and Late Preterm Care.

Amy Peterson, MD

Amy Peterson, MD
Echocardiography Training Coordinator
Professor, Pediatric Cardiology
University of Wisconsin School of Medicine and Public Health, Department of Pediatrics

Amy Peterson is an Assistant Professor of Pediatrics at the University of Wisconsin and a pediatric cardiologist at American Family Children’s Hospital. She is board certified in Pediatrics and Pediatric Cardiology, and her particular interests include transesophageal and fetal echocardiography to diagnose and treat congenital heart disease, education of pediatric residents, and diagnosis and treatment of lipid disorders in children and adolescents. Dr. Peterson attended medical school at University of Wisconsin and completed her pediatric residency at Children's Hospital of Wisconsin. She completed her pediatric cardiology fellowship at the Children’s Hospital of Philadelphia prior to joining the staff at AFCH.

Carol Mitchell PhD, RDMS, RDCS, RVT, RT(R), FASE

Carol Mitchell PhD, RDMS, RDCS, RVT, RT(R), FASE
Professor, Program Director Medical Imaging Sciences
University of Wisconsin Milwaukee College of Health Sciences, Biomedical Sciences

Dr. Mitchell received her Baccalaureate Degree from the University of Iowa. She received her Masters Degree Master of Arts degree in Education with an emphasis in Curriculum and Instruction from the University of Missouri in Kansas City and eventually received her Doctor of Philosophy Degree in Education from the same institution. Her doctoral research was entitled "The Path From An Occupation To A Profession: The Role of The Diagnostic Medical Sonographer." Dr. Mitchell is an active member for the American Society of Echocardiography (ASE) and is a member of its Sonographer Training and Education Committee. She is a member of the American Institute of Ultrasound in Medicine and the Society of Diagnostic Medical Sonography. In 2006 she received the Distinguished Educator Award from the SDMS and became a fellow in the SDMS in 2011. In June, 2010 she was awarded the American Society of Echocardiography Cardiac Sonographer Distinguished Teacher Award. Dr. Mitchell is also a fellow in the American Society of Echocardiography.

Dr. Mitchell's research interests include ultrasound assessment of atherosclerosis, vascular function, ultrasound education, acoustic measures and educational outcomes. She also participates in protocol development for several clinical trials and ultrasound disciplines.

Julie Panepinto, MD, MSPH

Julie Panepinto, MD, MSPH
SHINE Cost-Analysis Coordinator
Professor, Pediatric Hematology
Children’s Hospital of Wisconsin

Julie Panepinto, MD, MSPH, is a professor of Pediatrics at the Medical College of Wisconsin, Children’s Hospital of Wisconsin. She has extensive experience in conducting research in health care utilization, patient-reported outcomes and in decision analysis/cost-effectiveness. Her background training includes a Masters of Science in public health with a focus on epidemiology. As part of her thesis for her Masters, she examined newborn screening for sickle cell disease and applied decision analysis to determine the cost-effectiveness of screening. Her current research stems from the gap identified from this initial work where health-related quality of life was not known for these children and instead the cost-effectiveness analysis focused on lives saved, a crude marker. She has been funded by the NIH to conduct health-related quality of life research in children with sickle cell disease over the last seven years. On this proposed project, Dr. Panepinto will supervise the development of data collection for cost analysis. In addition, she will provide cost analysis for twice yearly summaries and for parents/advocacy groups and the Umbrella committee. She will be responsible for designing and conducting the cost analysis study for the final project report. Dr. Panepinto is well suited for this role given her prior work in newborn screening and her ongoing expertise in conducting clinical research.

Jody Belling, RN, MSN

Jody Belling, RN, MSN
SHINE Madison Research Coordinator
Clinical Nurse Specialist
University of Wisconsin School of Medicine and Public Health, Department of Pediatrics

Jody Belling, RN, MSN, is a research nurse coordinator with the Department of Pediatrics at the University of Wisconsin School of Medicine and Public Health. She serves as the WI SHINE project coordinator, which encompasses enrollment of hospitals, birthing centers and midwives. She’s also responsible for the coordination of pediatric cardiology data entry into WETRAC/heart. Ms. Belling’s background includes pediatric, public health, and maternal and child health nursing.

Julie Slicker

Julie Slicker
SHINE Milwaukee Quality, Outcomes and Research Manager
Outcomes and Research Manager
Children’s Hospital of Wisconsin

Julie Slicker is the Quality, Outcomes and Research Manager of the Herma Heart Center at Children’s Hospital of Wisconsin (CHW) in Milwaukee. She has worked at Children’s for over 6 years, primarily in the Cardiac ICU prior to transitioning in her new role as manager of the cardiac research team. Historically, her research interests have revolved around infants with critical congenital heart disease (CCHD) and their outcomes in growth, feeding and nutrition. The SHINE project was of particular interest to Julie because it involves diagnosing these infants earlier in hopes of improved outcomes. Her specific role in the SHINE project is as a part-time research coordinator where she has helped enroll centers, assist in retrospective cohort reviews of infants with CCHD and facilitate communication between CHW and UW Madison.

Mary Krolikowski, RN, MSN

Mary Krolikowski, RN, MSN
SHINE Milwaukee Research Coordinator
Children’s Hospital of Wisconsin

Sharon Fleischfresser, MD, MPH

Sharon Fleischfresser, MD, MPH, FAAP
Medical Director, Children and Youth with Special Health Care Needs (CYSHCN)
Wisconsin Department of Health Services

Sharon Fleischfresser, MD, MPH, FAAP is the Medical Director of the Program for Children and Youth with Special Health Care Needs in the Wisconsin Department of Health Services. Sharon is a member of the SHINE Project Steering Team and the SHINE project’s Data Collection Workgroup.

Elizabeth Oftedahl, MPH

Elizabeth Oftedahl, MPH
Epidemiologist, Children and Youth with Special Health Care Needs (CYSHCN)
Maternal & Child Health Program
Wisconsin Department of Health Services

Elizabeth Oftedahl, MPH, is an Epidemiologist in the Program for Children and Youth with Special Health Care Needs (CYSHCN) in the Wisconsin Department of Health Services.

Michael Payne
SHINE Data Analyst
Web Developer/Analyst
Wisconsin Department of Health Services

Michael is the lead developer for WE-TRAC (Wisconsin EHDI Tracking, Referral, and Coordination) application which receives newborn pulse oximetry results from the State Laboratory of Hygiene, and which hosts the interfaces to view and enter more detailed SHINE data. Michael played a major role in the development of the SHINE data form used by midwives and hospitals.

Mei Baker, MD

Mei Baker, MD, FACMG
SHINE Liaison
Co-Director, Newborn Screening Laboratory
Wisconsin State Laboratory of Hygiene

Mei Baker, MD, FACMG is a Co-director of the Wisconsin newborn screening laboratory and an associate professor of pediatrics at the University of Wisconsin School of Medicine and Public Health. She is currently serves on the Laboratory Standards and Procedures Subcommittee for the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children. Dr. Baker has successful experiences of developing, implementing and integrating newborn screening tests into an ongoing statewide newborn screening program. Dr. Baker oversees the activities of collecting and communicating CCHD screening information recorded on newborn screening cards, and coordinates newborn screening and support services across agencies.

Amy Basken

Amy Basken
SHINE Liaison
National Advocacy Coordinator
Mended Little Hearts

Mended Little Hearts is a national non-profit, volunteer-based organization whose mission is to provide hope and support to children, families and caregivers impacted by congenital heart defects in order to extend and improve quality of life. Amy has been a volunteer with Mended Little Hearts for 8 years serving the organization as National Advocacy Coordinator, as well as her local group leader. Mended Little Hearts is privileged to partner with the SHINE project in efforts to screen for critical congenital heart defects in newborns, offering the patient/family perspective to this important task.

Marijke van Roojen, LM, CPM

Marijke van Roojen, LM, CPM
SHINE Liaison
Wisconsin Guild of Midwives

Marijke van Roojen, LM, CPM is a License Midwife with over 25 years of experience in private midwifery practice. Ms. van Roojen has served on numerous oversight committees and boards, representing direct-entry midwifery at the local, state and national levels. In addition to her private practice, she has a long-term commitment to competency-based midwifery education both domestically and abroad, and to providing technical assistance and consultation to post-conflict, resource-poor localities throughout the world. She currently resides in Neenah, Wisconsin, and is on staff at BirthWise Health and Birth Center in Appleton. She is also an MPH in Maternal Child Health candidate at the University of Minnesota. Ms. van Roojen is consulting with the SHINE project on behalf of the Wisconsin Guild of Midwives.

Gretchen Spicer, CPM, LM

Gretchen Spicer, CPM, LM
SHINE Liaison
Wisconsin Guild of Midwives

Gretchen Spicer is a Licensed Midwife, a midwifery instructor at the Midwest Maternal Child Institute and a retired Paramedic. She is passionate about addressing the factors including institutional racism that contribute to disparities in birth outcomes. Gretchen works with Wisconsin Sound Beginnings and the SHINE project to provide affordable and accessible options for newborn blood, hearing and pulse oximetry screening for all babies born in out-of-hospital settings.

Ann Conway, MS, MPA, RN

Ann Conway, MS, MPA, RN
SHINE Liaison
Executive Director
Wisconsin Association for Perinatal Care and Perinatal Foundation

WAPC and the Perinatal Foundation have a combined 60-year history of working to improve perinatal care and outcomes in Wisconsin and beyond.  The goals of the SHINE project are similar to the goals of other WAPC projects, such as promoting universal newborn hearing screening, universal maternal screening for prenatal and postpartum depression, the responsible use of the NICU, a standard perinatal data platform, etc.

WAPC’s role in the SHINE project is to assure appropriate professional continuing education about the project, provide a conduit for information between perinatal care providers and the project team, and provide technical assistance about professional and consumer educational materials.